Day 59 and we are still waiting. It looks as though the clinical trial will be pushed back a bit due to complications with a patient already in the trial. Pat is looking and feeling better, the pneumonia seems to be improving. We literally are in a race...trying to keep Pat as healthy as possible until they can knock him back down with the next treatment. The concern is that the leukemia will continue to multiply before we can treat him. We are looking into the possibility of receiving treatment at another hospital and returning to City of Hope for the transplant. Dr. Zain said people travel all the time for treatment. Of course, Pat would rather not travel but he realizes we have to do whatever it takes to get him better and back with his family. He is a trooper, I truly don't know how he does it. I asked Pat what he has learned most from this experience and his response was "patience". He really enjoys hearing from all of you on the blogs. It's the highlight of his day. You never realize how much people care for you until times like these. Isn't that sad? I'm as guilty as the next of not letting people know how much they mean to me. I hope that is something I take away from this whole thing, the wisdom to take the time to make sure my friends and family know how much they are loved. I'll start right now!!! You, my dear friends and family have kept us afloat, your genuine concern for Pat is overwhelming. Thank you, thank you. Pray today for the leukemia to lie quietly and wait for us to beat it's butt. For Pat's strength, and for the Doctors to come up with a plan. Enoy your weekend. Much love.
xoxoxo,
Jules
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19 comments:
I so look forward to the updates...so, Thank You Julie for keeping us all posted. Pat...the prayers never ever stop at the Sigler House!
Love Always,
The Sigler 5
Hi Pat and Julie
This blog is a great idea. I have been checking for updates daily but just now getting around to posting. Keep up the positive thoughts. You can beat this!
I see you are involved in racing. I'm a Nascar fan. I am not familiar with your team or type of racing but would like to know more.
My husband Angel and I are wishing you all the best
~JanG~
(Dave's sister)
Good Morning... Just wanted to say Hi and let you know that I am thinking about you. Hope you get outside today and enjoy the fresh air. We are going to look at surfboards today for Zac - he joined the JSerra Surf Club. He's very excited because every Thursday after school they go down to the beach and surf for an hour. Anyways, have a great Sunday and just think...today we are one day closer to clincial trial and bone marrow! YeeHaw.... Love ya, Maribeth
Smiths!
thanks so much for keeping up with this blog. We all think and worry about you so much but know how difficult it is to keep up with phone calls. We remain convinced that Pat will overcome these obstacles and get back to his "regular" life. Sounds like you both will be forever "changed" which I guess is good but not really that much of a comfort. Anyway...keep hanging, we will keep praying.....
Love you all,
Kaplans
PS...we will probably have a new grandaughter tomorrow! Will keep you posted.
This message is for Pat....
Hello, Pat this is Albert. I hope things are going well for you. Robert fixed my left window, since it wouldn't lower or raise. Bob had Brian fix it for me. I just wanted to say hello and cheer you up with a little joke.
Two cows were talking in the field one day.
First Cow: Have you heard about the Mad Cow disease that's going around?
Second Cow: Yeah, makes you glad you're a penguin, doesn't it?
I hope you get well and take care.
-Albert
P.S. See you soon.
Pat and Julie, i read the blogs every day to see how
you are doing. i really appreciate keeping updated about your condition. hang in their and before you know it, it will be gone for good.
robert and dave took good care of me with my car. our prayers are with you and your family.
Mark
Hey Pat,Juie and family,I read your blogg once a week and I can only appreciate what your family is going through!!(And I get extra bonuses by getting up dates on your kids,family, etc.etc!!)I know this sounds redundant but seriously if there anything we can do please do not hesitate.I can help Cindy swirl yogurt or Cholie for that matter so they can go visit more!!We all kinda of feel helpless in these kind of circumstances!!Keep up the good work Pat...The Perkowski Family
morning pat . the weekend iam sure was full of visitors and love iam sure. its been hard without you but iam getting by and still feel good thanks to you , all i do is remember you are going to get my special chip someday soon . take care i gatta go . in all of our prayers daily ====bryan
Pat
Please know that whether you are staying here or traveling for the treatment our hearts and souls will be with you. Once again if there is anything you or family need, know that i am here ready and waiting. If that means driving you to some remote place in the US for treatment count me in! Keep up the fight and we'll keep up the prayers!
The Kimbles
Hi Uncle Pat,
I want to say Hi and tell you that me and my brothers are thinking about you. Are you going to watch the football game tonight? I am.
Okay bye.
Love,
Blake Sigler
Dear Pat and Julie,
Your Dad and I had a pleasant Sunday visit with you both. Have I.V., will travel! Wherever the clinical trials take you, you'll be one step closer to the transplant! Go for it! You can do it! Always thinking of you both.
Love, Dad and Jo Ann
Pat, thinking about you over here in Corona Land. Feel better stay strong and focused. Eat your weaties.
Peace out.
Kreg Donahoe
If your board check this out
http://www.myspace.com/donahoeracing
Hi Pat,
Eddie at Tustin gave me your blog. What a great idea. I am sure you have head that a million times. I am glad to hear that you are keeping such a positive attitude. Our lunch plans kinda got pushed back a little. When your ready please call. Let me know when you can have visitors. I would like to stop by and visit.
You and your family are in our prayers.
Talk with you soon!!
Byron
Good Morning, Get ready for some fun tonight.. Your 3 favorite sister's are coming to hang with you this afternoon. Can't wait to see ya. Cindy is making the beer run cuz she is the oldest. I sure wish I knew some spanish. You might want to call Jonelle to translate your last blog. See ya today... Love ya, Sandy
HEY PAT AND JULES JUST STOPPING BY TO WISH YOU THE BEST IN EVERYTHING. WE ALL LOVE AND PRAY FOR YOU , MASON AND THE GANG AT AHAB
TEST
Your prayers will be answered.
HELLO PAT AND JULIE, WOW I FINALLY FIGURED THIS OUT. I'M GLAD TO HEAR YOUR FEELING BETTER. JOE'S DAD CHUCK HAS KEPT US UPDATED, PUT THIS BLOG IS GREAT,(NOW I DON'T HAVE TO CALL CHUCK, YEAH!! JUST KIDDING.) WE'VE BEEN BUSY WITH THE GIRLS PLAYING VOLLEYBALL AND SOCCER,LOVING EVERY MINUTE. PAT, YOU ARE IN OUR PRAYS DAILY. KEEP GETTING STRONGER.
WE LOVE AND MISS YOU.
KATIE, JOE(JULIE COUSIN),HALEY, KYLIE. (WHERE'S THE SPELL CHECK?)
Hi Pat & Julie,
Hang in there, You will win this race. How could you not. You have more endurance then anyone I have every known, and I am one old lady, almost 66. Our prayers continue each day, and we know He hears us. He will bring you through this.
Blessings,
Mary Williams
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